ALS Update

My breathing capacity was 96% six months ago, three months ago it was 80% and just recently my breathing was measure at 65%.  My diaphragm is being affected.  At 50% they will put me on an external ventilation machine much like the kind for people with sleeping problems.   It will be used when I am sleeping.  When my breathing capacity dips even lower they will put me on a respirator and its hose will be placed into my trachea.  This respirator will be used 24/7.

Coughing is just being affected recently although I am coughing 95% of the time normally.  As my diaphragm  weakens I will not be able to get enough pressure behind a cough to get anything out of my throat.  When I can no longer cough out things in my throat on my own we will rent a coughing machine.  Consequently mucous, the common cold or the flue could be hazardous to my health.

My speech has deteriorated so much Debbie is having a hard time understanding me.  I need to use my talking box which I detest because it is much slow than speaking and when using it I want to just be quiet because I cannot keep up with the conversation.  By the time I finish typing the conversation has moved to another topic as conversations go.  I get so frustrated to the point of anger and anger can only be toward my Father in Heaven.  Forgive me Pa Pa and please make me more patient.